Click here for the story of how I got it published and the awards it has won.
Note there are more images planned for this page but I haven't had time to scan them and include them.
It began just over one year ago with an
invitation in a small hand-addressed envelope. The end result has been a
serious re-evaluation of my life goals.
Although it can be an emotionally risky exercise, often a person needs to
take a look back at his life in broad terms to remember where he has been,
how he has changed or failed to change and how he can proceed with his life
with some sense of purpose. I've just been through such an exercise.
Inside that little envelope was an embossed card which read, "You are
invited to an Open House at James E. Roberts Public School #97 from 2 p.m.
to 5 p.m. on May 18, 1986 commemorating 50 years of educating handicapped
students in Indianapolis. And on the occasion of the closing of James E.
Roberts School."
The school where I spent 13 years of my life and where I had not visited in
13 years, was being closed. I looked forward to the opportunity to visit
the school one last time. I needed to say a fond farewell to a building
full of wonderful memories of the early years and to forgive and forget the
memories of the later years.
I was born July 12, 1955, with a hereditary form of muscular dystrophy.
Ironically, that summer an event occurred which began to make the Roberts
school obsolete. Jonas Salk began widespread use of his polio vaccine and
the disease promptly disappeared. Indianapolis Public Schools built the
school in 1935 to educate the large number of children who struggled with
the effects of polio, rheumatic fever and other diseases. It became a
showplace for special education.
I was enrolled at Roberts School's kindergarten at age 5 and continued
there through high school. The building is part of who I am and why I
think, feel and act the way I do.
It was with great anticipation that I awaited the reunion with old friends
and teachers. I especially looked forward to seeing my old girlfriend, Rose
Ellen Shewman -- the first true love of my life. From my crush on her in
seventh grade, through the "puppy love" and heartbreak of eighth grade and
the true friendship that developed in high school, Rosie always has been my
fondest memory.
For the first few years after graduation, we kept in touch by phone, but I
lost track of her from about 1975-1983. A few years ago I found out where
she lived and gave her a call. At that time she was still single and lived
alone in an apartment in Greenwood. It was good to hear her voice again,
but our mutual promises to get together "soon" never were fulfilled.
If Rosie was as lonely as I, perhaps, as we had done in high school, we
could find comfort together. The gathering at our alma mater might at least
be the reopening of our old friendship if not the rekindling of our old
romance. I called her a few days prior to the reunion.
Her new husband answered the phone.
When the day arrived for the open house at
Roberts School, I gathered up my video camera mounted on my motorized
wheelchair to record sights and faces of my past. I rolled into the school
auditorium and fought through a crowd of alumni, staff, teachers and family
rushing to and fro as we all spotted old friends across the room.
Some of the teachers are not as enthusiastic about the closing as I. One
retired teacher voiced her concerns to me over the closing of Roberts. "I'm
not so sure this 'mainstreaming' is such a good idea," she said.
"As one who has seen both sides," I replied, "I have faith it can and does
work." My last three years of high school were spent going half day to
Northwest High School in my neighborhood and half day to Roberts.
She feels that I'm an exception. "You were always such a bright boy," she
would say. It's true that the typical Roberts student of recent years
probably has varying degrees of mental handicaps along with the physical
problems. However, the students with mental handicaps benefit from having
their special classes housed in a building with regular students.
Communities that had no special education programs were forced by a 1969
law to establish them. Most of them have chosen mainstreaming and it works.
With Roberts closed, mainstreaming will happen more and more in
Indianapolis, too.
I have intimate connections to Roberts
School, but they are pale in comparison to Clara Rose Holmes, my third
grade teacher.
The 60-year-old teacher has been at Roberts for nearly its entire history.
She attended Roberts in grades five through eight because her left leg and
right arm were weakened by polio. She then attended Shortridge High School
and Butler University. She returned to student teach at Roberts and has
taught there ever since. Nobody was surprised that she was taking this
opportunity to retire. "It just wouldn't be the same elsewhere," she
recently told a friend.
Miss Holmes was a great influence on me in both positive and negative ways.
She recognized my potential as an academically gifted student and allowed
me to progress rapidly with two other students. In third grade we were
doing long division before the slower kids were finished learning
multiplication. She encouraged me to work hard and to feed my curiosity.
She instilled in me a love for reading. These gifts have been a source of
strength for me over the years.
In recognizing that I had academic potential, she assumed that "busy-work"
was a waste of my time and talents. I was exempt from the tedium of some
math and spelling drills. I concentrated on more interesting concepts such
as compound sentence structure, geometry, logic and science. The end result
is that I can turn very clever phrases, understand mathematical
abstractions and am a Computer programmer of great skill. On the other hand
I cannot accurately add a column of numbers or spell worth a damn.
One thing Miss Holmes and others at Roberts taught me is that having a
handicap does not hinder one from doing one's part in contributing to a
group. Nor does a handicap exempt one from those responsibilities. We all
shared responsibilities in her class. The more able-bodied students pushed
wheelchairs. The smarter ones tutored. This emphasis on ability not
disability has been an important part of my own dealing with my handicap.
She fears that in a regular school such lessons will be lost.
I understand Miss Holmes' concerns. But I'd rather see the same lessons she
taught me presented in a regular school so that handicapped and non-
handicapped students can experience together the sense of responsibility
toward one another that was a tradition at Roberts.
There was an article about her in the newspaper soon after the reunion. The
headline read "I.P.S. closing its haven for handicapped, but teacher won't
forget." We won't forget you either, Miss Holmes.
As I entered high school, it became
apparent that the program at Roberts was substandard. Mom arranged a deal
where I could attend Northwest High School for a half day and take classes
on the first floor. The other half of the day I attended Roberts and took
whatever classes were upstairs and inaccessible at Northwest. The school
system provided transportation on a wheelchair bus in the morning and
afternoon, but the midday ride between Roberts and Northwest was provided
by Mom. Every day for my last three years of high school, she drove seven
miles across town and seven miles back just so l could get a quality
education. She did this through a problem pregnancy, a lung disorder and
other hardships.
My mom is remembered by some as he lady who thought Roberts wasn't good
enough for her son. The truth was that none of us belonged there.
Beatrice Rogers remembers me well. She was
my fifth grade teacher when I got my first motorized wheelchair. She
remembers that I'd had it less than an hour when I ran over her foot. Mrs.
Rogers was a wonderful teacher who made her classroom interesting by always
having projects going on. I had a nice chat with her at the reunion and it
brought back memories.
The most important event that fifth grade year was that I got my first
motorized wheelchair. The PTA supplied manual wheelchairs for all the kids
to use at school and I had one of own for use at home. But in January
1965, Mrs. Vern Hollingsworth donated a motorized wheelchair to the school
in memory of her husband who was the chair's previous owner. I was chosen
as a student who could benefit from its use. I never met Mrs. Hollingsorth
or knew anything about her except that she had donated the chair and put a
small brass plaque on it advertising the fact. Having to answer a hundred
times, "Who's Vern Hollingsworth?" was a small price to pay for the
fantastic freedom the chair provided.
My most memorable experience of the chair was the first day I drove up and
down "The Big Ramp." Roberts School was designed from the beginning as a
school for the handicapped. Why they made it multilevel and two story is a
mystery to me. There were small ramps between various ground levels and
they were quite tame. My motorized wonder easily climbed them. Going down
them I always made sure the way was clear and then I would let it fly
downhill. But I didn't discover that my wheelchair behaved differently on
ramps until I tackled The Big Ramp.
Grades six through high school as well as the therapy departments were on
the second floor and accessed by either elevator or ramp. one day soon
after I got my new chair, I had to go upstairs to practice for a music
program with the upper grades. Rather than wait on the elevator with the
other fifth graders, I ventured up the big ramp alone.
I was a little scared on the trip up, but the trip down later that day was
really terrifying. The first segment isn't too steep but is longer than the
little ramps I was used to. As I started down, everything was OK until I
began drifting to the right. I tried turning left but the chair steers by
speeding up one motor and slowing the other. My attempts to turn were
barely successful and it caused me to go too fast. The length of the ramp
let me go faster still. As I approached the level 180-degree left turn I
recalled my training-"When in trouble, let go." I let go of the joystick
and kept going anyway! I crashed into the curved brick wall and slid half
way around it. My right footrest was bent inward and my foot was twisted
but not hurt.
With my reputation at stake, I had to go on. Carefully, I drove around the
curved landing and stared down the most terrifying hall in the building.
The longest, steepest section of ramp lay before me and I didn't yet know
what had gone wrong on the last section. Unlike the sturdy brick wall I'd
just hit, below me was a banked curve protected by a railing that looked
much weaker than when I'd seen it before.
Aiming as carefully as I could, I started down -- going much too fast for
safety. Again I drifted to the right. My attempts to correct the drifting
were in vain, and 15 feet from the curve I glanced off the right side wall
and let go of the controls again. The slide along the rail slowed me
somewhat, but I still hit the balcony railing. I was thrown against my
safety belt and slumped forward over it. The rail held strong and my other
footrest bent to absorb the impact. I yelled for help and someone ran up
the ramp to rescue me.
I later learned that you can coast down the ramp without applying any power
and still go quite fast. To stop, you don't let go. you pull back on the
joystick and apply reverse power. By the time I reached sixth grade I was
Hell on wheels. I'd take most sections of the ramp under full power. To
turn, I'd lock one wheel in full reverse while giving full forward power to
the other wheel. The narrow hard rubber tires would slide on the smooth
floor and I'd whip around the turns in a four-wheel drift like a sprint car
on a dirt track.
But that was years ago and I've just settled into my third motorized
wheelchair. My last trip down the big ramp was 13 years ago on the last day
of school. Part of my nostalgic return to Roberts had to include one more
trip up and down The Big Ramp. My video camera recorded the trips but there
was no way to recreate the speed or the sliding turns.
Thirteen more years of muscular dystrophy have taken their toll on me. I
barely have the strength in my right arm to push the control joystick while
riding on smooth level ground. Sharp turns even on level ground are
difficult. Gone are the split second timing and delicate dexterity that are
required to navigate the wheelchair equivalent of Pike's Peak.
Of all the teachers I hoped to see that
day, Ron Kohl was at the top of my list. I wasn't disappointed. Mr. Kohl
really enjoyed the challenge of an intelligent, lazy student like me. The
reason I'd hoped to see him was to confess how I'd cheated on an I.Q. test.
One summer, Mr. Kohl called and said that as a class assignment for a
master's degree course, he had to give a student an I.Q. test and analyze
the results. I agreed to be his subject.
He came to my house for two days and gave me a battery of standard
achievement tests. During the tests we sat in the same room across a desk
from each other and he never left the room. Yet, by my superior
intelligence and dumb luck, I discovered a flaw in the test design and
cheated right before his eyes. Somehow I got the nerve to tell him after
all these years.
As in most tests, you were required to fill in the multiple choice answers
with a No. 2 pencil. The entire first half of the test I took legitimately.
For part two you flip the page over and mark the other side. The lazy
designer used the same key for the front and back. As you looked through
the paper, the black marks lined up! Furthermore, you flipped the page top
to bottom. The easy questions at the top of side one are opposite the
difficult questions on side two. That means that the harder the question on
side two is, the more reliable your information from the other side
becomes.
Most multiple choice questions have five choices. Two of them are obviously
wrong, one is probably wrong and the thing that separates the men from the
boys is discerning between the last two. Whenever one of them matched a
mark from the other side, I picked it. The test went faster, I answered
more questions and was less likely to be hurt by guessing.
"I've rationalized it all," I told him, "by saying that if you're smart
enough to cheat and get away with it, then you deserve the extra points."
He laughed and agreed, adding that it was no wonder he had such a rough
time analyzing it. He then said I only ended up with a 115-120 I.Q. I
always figured I had 110-115 anyway.
Later that afternoon while touring the
rooms upstairs, I ran into Ron Kohl in his former classroom. There was a
photo album belonging to Miss Holmes on display. Together, Mr. Kohl and I
looked through the old photos and exchanged stories about my former
classmates.
One special memory came to mind when he stumbled across photos of Leslie
and Nancy Gilson. They were the only other students with motorized
wheelchairs and Nancy gave me driving tips after my bad trip down the ramp.
Nancy was two years ahead of me and her sister, Leslie, was perhaps three
to four years older. They both were very bright and extremely frail from
the effects of neuromuscular disease. I would race down the halls clutching
my joystick like a Hearst four-speed, but these innocent little girls would
daintily grasp their joysticks and could outrun me any day.
Their disease was far worse than mine. Leslie died in her senior year but
was awarded a diploma anyway. I asked Mr. Kohl if Nancy was gone yet.
"Yes," he answered, "she died several years ago."
"I doubted she was around," I said, knowing that virtually all my friends
with MD are dead by now.
He then related the story of the day Leslie died. Nancy was in school and
knew her sister was in poor shape. Word spread among the staff that Leslie
had died and the family asked that Nancy not be told until she arrived home
that afternoon. When they told her that Leslie had died, she very calmly
began giving orders, "She wants to be buried in her blue dress, the bearers
should be these people, the eulogy should be by ... etc." The sisters had
prepared for this day for a long time. Late al night in bed they would talk
and make plans for the day when there would be only one Gilson sister.
I miss Nancy. She was a dedicated student and I looked up to her. I'm sorry
she's gone. But I'm happy she is reunited with Leslie in a place where all
curbs have ramps, all ramps are shallow and motorized wheelchairs all run
the same speed.
When Rose's husband answered the phone, I
suppressed my disappointment and asked to talk to her. She told me she met
her husband two years ago, which was about the last I'd talked to her. They
were married the following November.
She said they were planning to attend the reunion and I'd see her then.
Although we had talked several times over the years, I'd not seen her since
graduation day. I know that Friedereich's ataxia is a degenerative
neurological disease and I could tell that her speech was beginning to
slur. I didn't know what other effects 13 years of the disease might have
had.
Rose was not only any first true love in junior high, she was my first true
friend in high school. At 17, she had a tall thin Figure, great legs, sandy
blond hair and blue eyes. Rose's most distinctive feature has always been
her very angular sculptured face with high cheekbones and a broad smile
that creates wonderful dimples.
As I toured the school auditorium talking to friends, someone said, "Rose
is over there." I turned around to see her a few feet away talking to a
teacher. Her husband was standing behind her leaning on her wheelchair. I
approached, aimed my video camera carefully and turned it on.
She looked great to me. Her figure is the same and she had her hair cut
slightly shorter than it usually had been. She was wearing large, designer
glasses rather than her '70s wire rims. The main change was the wonderful
air of maturity she had acquired. This was not the cute 17 year old I'd
said goodbye to 13 years ago. This was a distinguished, mature, 30-year-old
woman who still had the same broad smile and blue eyes.
Although she was somewhat shakier than before, I'd prepared myself for the
effects of her handicap to be much worse than they were.
With my video camera running I waited a few seconds until she finished her
conversation, and then I said, "Hi Rose."
She turned and looked right at me and smiled, then introduced me to her
husband. "This is Chris, he's the guy who called last week." I said some
complimentary things to him about his great catch and congratulated them. I
told her she was looking good and I was happy to see her. We chatted about
various teachers we'd run into. I noticed she had a photo album, so I asked
about it. It contained her wedding pictures. I suffered through looking at
those, but I already knew what she looked like in a wedding dress. I'd seen
it in my dreams for at least 10 years.
I'm glad I saw Rosie again. I'm happy that she is happy, and I am not
jealous that her husband married her. I had 13 years when I could have
chased her and didn't. I'm jealous that she now has someone with whom she
can share her joy and sadness, her highs and lows her pleasure and her
pain.
I had myself a good, hard cry all the way home.
They called it a high school but it
wasn't.
It was 30 students, two teachers, two classrooms, 12 periods a day each 30
minutes long, no labs, no equipment, little opportunity to grow socially
from ages 14-18. It wasn't a high school. If you took the maximum five
subjects and had lunch one period, that filled six of your 12 periods. The
other three hours a day were "study hall." Most of the time we tried to
study in the same room while other classes met. There was a balcony porch
near the high school rooms and we eventually got permission to study
outside when the weather permitted. On rainy days we'd sit in the doorway
and watch it rain and wonder why we ever gave a damn about anything. We'd
talk about opportunities closed to us, sexual experiences we'd dreamed of
and uncertain plans for our future. Depression ran rampant through us and
we'd ask ourselves and each other, "Why try?"
I pressed close to the window and ran my camera to record that view. I need
to remember always the depression of those days. I need to remember them
vividly, so I'll never be tempted to withdraw back into that state.
In addition to the two full-time high
school teachers, we shared two part-time teachers with the junior high for
shop, home economics and music. Betty Atkins was one of them. I saw her at
the reunion and smiled broadly at her saying how good it was to see her.
She smiled back and was happy to see me too. We didn't really talk much but
those exchanged smiles were important. We both remember a time when I
wouldn't smile at gunpoint.
I recall one day she called me aside and lectured me for being unfriendly
and rude. "When?" I asked.
"Nearly always," she said. "I pass you in the hall and smile at you or say
'Hi!' and you mostly ignore me or just grunt. Smile once in awhile or
people will think you're being rude."
I explained to her that while I wasn't trying to be rude or offensive,
often I didn't have anything to smile about.
I'm not sure if that conversation had anything to do with it, but several
weeks later they called all 30 of us together in Mrs. Atkins' room for a
"rap session" to talk out our problems. It seemed to do us little good at
the time, but I now consider it a turning point for me. During the rap
session that day I made a big speech.
"You hear all these stores about the 'Super-Cripple' types who make it in
the world and are successful and are supposed to be our role models," I
said. "But I'm not FDR or Stevie Wonder or that girl from 'The Other Side
of the Mountain.' Where did they get that strength? How did they overcome
their handicaps? What do I do to tap into their magic that lets them cope
or achieve or be somebody?"
Nobody could tell me.
And I then realized that nothing magic was going to happen. The way to do
it was to just do it. Just be. There's no magic. Perhaps it was indirectly,
but Betty Atkins helped me realize all of that. You either do something in
your life, or sit and do nothing. I'm a "do something" person.
So that day at the reunion, I smiled at Betty Atkins.
Here's a litany of people I miss s dearly
who weren't at the reunion. I've included my relationship with them and why
they weren't there.
Terry Johnson, best friend, died at 18 of muscular dystrophy and pneumonia.
Calvin Brandon. buddy died at 24 of muscular dystrophy and pneumonia.
Wayman Glass, buddy, died at 24 of muscular dystrophy and pneumonia.
Gene Storms, class nerd, died at 16 of muscular dystrophy and pneumonia.
Mark Heron, neighbor and best friend, died at 25 of muscular dystrophy and
pneumonia.
Tim Monasmith, classmate, died at 21 of complications of his handicap.
Dan Moran, classmate with whom I argued a lot but never had the chance to
apologize, died at 17 of complications of his handicap.
Carl Nash, buddy who I've seen several times over the years, who always
greets me by saying disgustedly, "Aren't you dead yet? I thought all you
dystrophy assholes were dead by now. Hurry up and conform!" That's Nash's
way of saying, "I'm glad that at age 31 you've beaten the odds." Nash is
living in southern Indiana with his wife, Mary, also a Roberts alum.
James Allen Whitney, a. k.a. "JAW," class clown, alive and still clowning
somewhere.
Estel Troxel, best friend, moved to Kentucky at age 16. I haven't heard
from him since.
Cheryl Abney, girlfriend in kindergarten, married and employed as a
secretary despite the fact that she was born with no arms.
Lilly Ottinger, girlfriend in fourth and fifth grade, transferred to
regular school and whereabouts unknown.
Cheryl Fayette, my date at the senior prom, married and living somewhere.
Mr. Batt, shop teacher who didn't send us to the principal the day we stole
Cheryl Fayette's purse and hung it out the boy's restroom window and dared
Cheryl to come in and get it, his whereabouts unknown.
Mrs. Ashabrener, principal (a.k.a. Mrs. Trash Burner), died of cancer.
John Sementa, janitor who told us jokes all the time, whereabouts unknown.
When Roberts School opened it was a
pioneer. A pioneer named Salk robbed Roberts of its primary source of
students. Many people, including my mother, who have worked hard for
mainstreaming of handicapped kids, were pioneers. My heroes in junior high
were pioneers like Neil Armstrong. The teams at my part-time high school
Northwest are known as "The Space Pioneers.: I was the first wheelchair-
bound student to attend that school and that was a type of pioneering
itself. Some of the consulting I've done has been to apply computer
technology to help handicapped people. I see pioneering in other aspects of
my work too.
But that's history. Roberts School became an anachronism in a modern world
of mainstreamed special education. Salk has become disillusioned with the
institute that bears his name and has left to work on an autobiography. The
advocacy groups that fought for mainstreaming are dying out. Northwest High
School was recently one of several considered for possible conversion to
junior high by the school board. Although spectacular progress has been
made to mainstream severely retarded students at Northwest, no efforts have
been made to make the school accessible so other physically handicapped
students can follow me there.
I have no control over those who are swallowed up by progress-with one
exception. I control myself.
Have I become stagnant and lost my "pioneer spirit" while friends got
married and raised children? Roberts School failed to stay at the forefront
of special education. Have I likewise rested on my early accomplishments?
My business survives but it doesn't really prosper. I've reestablished my
relationship with God and the Church but it's now an ongoing gradual
spiritual growth rather than the spectacular leaps of faith and
understanding of times past. I'm pleased with the work I do, but it is
sometimes tedious and lackluster. I've not totally given up on the idea of
sharing my life with someone, but my prospects are poor.
Given all of the above, I think I'm keeping up OK. I'm not being left
behind in the waves of progress.
But I'm no longer a pioneer . . . and I miss it.
After careful reflection on my life since the reunion last year. I've
decided to do the following . ..
1) I'm going to continue to focus my computer programming skills in
creative ways, especially applications of computers for handicapped users.
2) I'll continue to keep options open in my relationships with women and
not presume that parts of my life are closed.
3) I'm taking seriously the words of my friends who have read my journals
and reflections such as this. I'm going to believe them when they say I've
made them laugh, cry, think, feel and remember. A few years ago, a special
friend told me I should write an autobiography. She has offered to advise
me on getting it published and to correct my spelling. Others have
encouraged me and made similar offers.
I can't say "no" anymore. I'm going to explore and expand my experiences
like the pioneer I once was..
Click here to return to my handicap page.
Click here to return to my home page.
Last updated:February, 1996
I toured the high school rooms that day at the reunion and they were almost
empty. One looked like it was used as a storeroom and mimeograph room. I
tried the doors to the porch. It was locked but I could see that the tables
were gone. Appropriately enough, it was raining.
"The Reunion" © Copyright 1987,1996 Chris Young; 3119 Cossell
Drive;Indpls. IN 46224
Click here to read what happened since its
publication.